Journal of Psychosomatic Research
Volume 70, Issue 2 , Pages 161-167 , February 2011

Associations between illness perceptions and health-related quality of life in adults with cystic fibrosis

  • Gregory S. Sawicki

      Affiliations

    • Division of Respiratory Diseases, Children's Hospital Boston, Harvard Medical School, Boston, MA, USA
    • Corresponding Author InformationCorresponding author. Division of Respiratory Diseases, Children's Hospital Boston, 300 Longwood Avenue, Boston, MA 02115, USA. Tel.: +1 617 355 6105; fax: +1 617 730 0097.
  • ,
  • Deborah E. Sellers

      Affiliations

    • Center for Applied Ethics, Education Development Center, Inc., Newton, MA, USA
  • ,
  • Walter M. Robinson

      Affiliations

    • Center for Applied Ethics, Education Development Center, Inc., Newton, MA, USA

Received 24 February 2010 ,Revised 18 May 2010 ,Accepted 8 June 2010.

References 

  1. Cystic Fibrosis Foundation. Cystic Fibrosis Foundation patient registry annual data report for 2008. Cyst Fibros Found. 2009;
  2. Yankaskas JR, Marshall BC, Sufian B, Simon RH, Rodman D. Cystic fibrosis adult care: consensus conference report. Chest. 2004;125:1S–39S
  3. Sawicki GS, Sellers DE, Robinson WM. Self-reported physical and psychological symptom burden in adults with cystic fibrosis. J Pain Symptom Manage. 2008;35:372–380
  4. Sawicki GS, Sellers DE, Robinson WM. High treatment burden in adults with cystic fibrosis: challenges to disease self-management. J Cyst Fibros. 2009;8:91–96
  5. Flume PA, Mogayzel PJ, Robinson KA, Goss CH, Rosenblatt RL, Kuhn RJ, et al. Cystic fibrosis pulmonary guidelines: treatment of pulmonary exacerbations. Am J Respir Crit Care Med. 2009;180:802–808
  6. Abbott J, Hart A, Morton A, Gee L, Conway S. Health-related quality of life in adults with cystic fibrosis: the role of coping. J Psychosom Res. 2008;64:149–157
  7. Gee L, Abbott J, Conway SP, Etherington C, Webb AK. Quality of life in cystic fibrosis: the impact of gender, general health perceptions and disease severity. J Cyst Fibros. 2003;2:206–213
  8. Gee L, Abbott J, Hart A, Conway SP, Etherington C, Webb AK. Associations between clinical variables and quality of life in adults with cystic fibrosis. J Cyst Fibros. 2005;4:59–66
  9. Yi MS, Tsevat J, Wilmott RW, Kotagal UR, Britto MT. The impact of treatment of pulmonary exacerbations on the health-related quality of life of patients with cystic fibrosis: does hospitalization make a difference?. J Pediatr. 2004;144:711–718
  10. Quittner AL, Buu A, Messer MA, Modi AC, Watrous M. Development and validation of the Cystic Fibrosis Questionnaire in the United States. Chest. 2005;128:2347–2354
  11. Goss CH, Quittner AL. Patient-reported outcomes in cystic fibrosis. Proc Am Thorac Soc. 2007;4:378–386
  12. Leventhal H, Brissette I, Leventhal EA. The common-sense model of self-regulation of health and illness. In:  Cameron LD,  Leventhal H editor. The self-regulation of health and illness behaviours. New York: Routledge; 2003;
  13. Hagger MS, Orbell S. A meta-analytic review of the common-sense model of illness representations. Psychol Health. 2003;18:141–184
  14. Hale ED, Treharne GJ, Kitas GD. The common-sense model of self-regulation of health and illness: how can we use it to understand and respond to our patients' needs?. Rheumatology. 2007;46:904–906
  15. Leventhal H, Cameron LD. Behavioral theories and the problem of compliance. Patient Educ Couns. 1987;10:117–138
  16. Leventhal H, Diefenback M, Leventhal EA. Illness cognition: using common sense to understand treatment adherence and affect cognition interactions. Cognit Ther Res. 1992;16:143–163
  17. Petrie KJ, Weinman J. Why illness perceptions matter. Clin Med (Lond). 2006;6:536–539
  18. Kettler LJ, Sawyer SM, Winefield HR, Greville HW. Determinants of adherence in adults with cystic fibrosis. Thorax. 2002;57:459–464
  19. Moss-Morris R, Weinman J, Petrie KJ, Horne R, Cameron LD, Buick D. The Revised Illness Perception Questionnaire (IPQ-R). Psychol Health. 2002;17:1–16
  20. Griva K, Myers LB, Newman SP. Illness perceptions and self-efficacy beliefs in adolescents and young adults with insulin dependent diabetes mellitus. Psychol Health. 2000;15:733–750
  21. Horne R, Weinman J. Self-regulation and self-management in asthma: exploring the role of illness perceptions and treatment beliefs in explaining non-adherence to preventer medication. Psychol Health. 2002;17:17–32
  22. Scharloo M, Kaptein A, Weinman J, Hazes JM, Willems LNA, Bergman W, et al. Illness perceptions, coping, and functioning in patients with rheumatoid arthritis, chronic obstructive pulmonary disease, and psoriasis. J Psychosom Res. 1998;44:573–585
  23. Bucks RS, Hawkins K, Skinner TC, Horn S, Seddon P, Horne R. Adherence to treatment in adolescents with cystic fibrosis: the role of illness perceptions and treatment beliefs. J Pediatr Psychol. 2009;34:893–902
  24. Sawicki GS, Sellers DE, McGuffie K, Robinson W. Adults with cystic fibrosis report important and unmet needs for disease information. J Cyst Fibros. 2007;6:411–416
  25. Liou TG, Adler FR, FitzSimmons SC, Cahill BC, Hibbs JR, Marshall BC. Predictive 5-year survivorship model of cystic fibrosis. Am J Epidemiol. 2001;153:345–352
  26. Portenoy RK, Thaler HT, Kornblith AB, Lepore JM, Friedlander-Klar H, Kiyasu E, et al. The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress. Eur J Cancer. 1994;30A:1326–1336
  27. Abbott J, Dodd M, Webb AK. Health perceptions and treatment adherence in adults with cystic fibrosis. Thorax. 1996;51:1233–1238
  28. Myers LB, Myers F. The relationship between control beliefs and self-reported adherence in adults with cystic fibrosis.. Psychol Health Med. 1999;4:387–391
  29. Abbott J, Dodd M, Gee L, Webb K. Ways of coping with cystic fibrosis: implications for treatment adherence. Disabil Rehabil. 2001;23:315–324

 Results of this study were presented in abstract form at the 2009 North American Cystic Fibrosis Conference, Minneapolis, MN.

PII: S0022-3999(10)00253-9

doi: 10.1016/j.jpsychores.2010.06.005

Journal of Psychosomatic Research
Volume 70, Issue 2 , Pages 161-167 , February 2011